Welcome!

This blogging is all new to me. I'm hoping other "special needs" parents might find comfort in knowing they are not alone. Also, I think it is important for me to document my son's accomplishments, struggles, not to mention mine as well.

Monday, April 9, 2012

When did we know?

I've been asked that question before,When did we know Colin was "different" or in one case "something was wrong with him"? I remember one mom from daycare (Colin was probably 2 years old at the time) said to me (and I quote) "So,what IS wrong with him?" Those were her exact words and I will never forget them,or her, for as long as I live. My reply to her,"Nothing is wrong with him." But then (you will not believe this) she said,"Well,does he have Downs or is there a name for it?" OK,really? By this point I was furious,sad,angry,and just plain appalled. I think I went home and cried. Ok so,when did we know? I think when I look back I knew from the very beginning. My gut told me something wasn't right. However,it wasn't until after he turned a year old (and some months) that I finally accepted something was not quite right. Colin was always very large for his age. He really was a huge,rolly polly baby and the Dr. always said he was in the 99th percentile. We always just chalked off his inability to roll over,sit up,crawl,walk,etc.,etc.etc. because he was just too fat to be able to do it when he should. He was always significantly behind his same age peers for all of the milestones. When he wasn't walking at 14 months (and not even close to it) we called Early-On,the early childhood intervention program. They evaluated him and low and behold not only was he behind in his gross motor skills (which is why we called) but he was behind in ALL areas-speech,cognitive and fine motor skills. Talk about a double (triple) whammy! Of course we started him on therapy right away. When he turned 3 he qualified for the ECDD(Early Childhood Developmentally Delayed) pre school program through the school district. He rode a school bus and attended 4 mornings a week.

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