One step forward, two steps back.

      Back when C started having health issues, a long, long time ago, nothing was very cut and dry.  It always felt as if there was one set back after another. For example, after having diarrhea for 6 weeks, we finally found out he had Ulcerative Colitis. Not life threatening, but manageable with meds. Whew! So of course, the medicine we tried, he had an allergic reaction to. So we had to go back to square one. That same year he got hit in the eye with a baseball and had blood in his tears. And last but not least, he broke his foot. I should know better then to let my guard down and think we are sailing on smooth waters. But, I do. And then, something happens.
     So, C had a seizure at school last week. He has never had one (as far as we know). We spent some time in the ER but not much came from that. So we have an appointment with neurology. We also have an appointment with cardiology because they found a QT prolongation of his heart. The clincher is this, the one behavior med that I actually thought was doing it's job, well, that could cause seizures and the heart thing. Yup. So we had to take him off of that med for the time being. So as far as his behavior is concerned, I feel we are back to square 2 (not 1 because we are still on an anxiety drug).  So far we have not had any MAJOR (red zone) issues since being off the med for a little over a week. I'm holding my breath and keeping my fingers crossed.
      As for the other issues, this is not new to me (having a child with health issues). We've done this before and we'll do it again. I do wonder though, "what more could this child possibly go through?" And now I realize that this is normal for us. Having issues (health, behavior, academic,etc.) it is normal for us, this IS our normal. This is our life and this will be our life. No more letting my guard down and thinking it will be smooth sailing from here on out. I don't think that will ever be the case. And if it is,well, then so be it. But, I will never let my guard down again.