Whenever C goes through a health crisis, I go through my own crisis. At first, I always think the worst. "What if it's cancer....." that always is my first thought. So I usually get myself all worked up for nothing. The weird thing is though, I want it to be something (just not cancer). So before our appointment with neurology today, I wanted them to find something wrong with him (just not cancer). I won't go into the boring details leading up to the visit with the neurologist but basically, there is nothing. At least nothing that anyone can explain. I will be honest, the doctor was not very helpful, at all. I had a million questions about this seizure episode, his erratic behavior, his frequent headaches. Nothing. She could tell me nothing. She didn't even have advice to give me. And she wants a follow up appointment and is referring us to Genetics because? Not sure. She didn't explain that well either. We've been to Genetics and they were not helpful and I think I will cancel that follow up appointment (unless C has another episode).
Luckily, I have a great pediatrician. I know he will give me sound advice. I have a call into the psychiatrist to see if we can't try a different medicine similar to the one we took him off. I hope that the QT prolongation they found in the ER has resolved itself by the time we go to see the cardiologist. Again, that may have been caused by the behavior med we took him off.
Up and down, up and down! Just like riding on a roller coaster........
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