Today we had our appointment with the Cardiologist. Back when C had his seizure and we were at the ER they did an EKG and found a QT prolongation. My understanding is that is the time between heart beats and his number was on the high side which means he has a longer time between beats. Since we took him off of the med (that was working) that might have caused the seizure, that same med could cause QT prolongation as well. I was hoping that since he is off that med that his rhythms would be at a more normal number and we would be done with the cardiologist. Do you want the good news first or the bad news? Let's do the bad first. His numbers were lower but still in the gray area and the doctor thinks the one behavior med he is on might be the cause. He wants us to see if we can find a different drug and then check with him again in 3 months. Which means that essentially we have to start over on the behavior meds and we have to go back (another appointment). Ok, so that's the bad news. The good news is that everything else with his heart looks good!
The other bad news is that he is still having angry episodes (although nothing too violent) and in the meantime he is destroying things. Tonight was a rough night. I thought things were going well and then he exploded! Long story short, we managed to escape kicks, punches, bruises and the like however, we need to buy another blind for his bedroom window. It took about 2 hours for him to calm down and finally go to bed.
So I feel as if I am living on the edge, but not in a fun way. It's more of a "I don't know what is going to happen next but good or bad, I've got to go with it!"
This is not a picture from today but a picture from our appointment with the neurologist a few weeks ago. I'm finally figuring out how to add photos to this blog. This was getting ready to do an EEG of his brain. Basically, trying to trigger a seizure.
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